Over 97,000 Signatures Received to Help Save Young Boy’s Life; 3,000 Additional Signatures Needed

cohen[SIGN HERE] [Reposted upon request] TLS was asked to publish the following White House petition in hopes of saving a young boy’s life: The Cohen family, of Houston, TX, is facing a battle none of us should have to go through – aggressive brain cancer in their 6-year old son Refael Elisha. Having recently received the devastating news from their doctors that “there is nothing more we can do for him,” the Cohens are turning to a last resort – Antineoplaston Therapy at the Burzyinski clinic.

However, the FDA pulled their approval for this treatment in 2012 pending further clinical trials. We are told that the FDA is nearing approval to resume this treatment, but Refael Elisha does not have time to wait.

The FDA has the power to approve a “compassionate use exemption” so Refael Elisha can undergo this therapy to try and save his life.

We are asking the FDA to grant this exemption so we can continue to fight for his life.

You can sign the petition here.

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26 COMMENTS

  1. Done! Everyone please take the time to sign the petition. If you have to create an account, take five minutes to try to save a life. Today is an especially strong day to help. Refuah Shelayma and Hatzlacha Rabba to all in need!!!

  2. It’s so painful to have to see a family grasping at straws to save a child. It’s sad that people are trying to make unscrupulous profit off such families.

  3. Steps:

    1: Click the link above

    2: Click the blue button labeled “CREATE AN ACCOUNT”

    3: Fill in your email address , name and zip. and submit by clicking the “CREATE AN ACCOUNT” button

    You will be emailed a link to confirm your account.
    4: Open the email and click the link to confirm

    You will be returned to the website.

    5: Click blue button labeled “SIGN THIS PETITION”

    DONE

    Pass this on to your friends

    and remember to Daven for Refael Elisha Meir Ben Devorah

    and the rest of AM Yisroel

  4. there are two biopharma copanies trying a new type of treatment maybe u can get onto trial for Northwest Biotherapeutics for gbm or ImmunoCellular nwbo sounds better

  5. Just signed…

    Having said that, I want to clear something up. Reaching 100,000 signatures does not mean the boy will get the medicine. It simply means the white house will issue a response to the petition. Of course, we should all sign it, but from the headlines it seems like if we hit 100k, the FDA will give him the drugs and that is not the case at all.

  6. Signed and shared.

    But what we really need is to abolish the FDA, switch to a market-based system of competing quality assurance / safety certification authorities, and thus avoid having to (moderated) every time a patient / parents / doctors believe that the risks are justified.

  7. Although its great to have this petition to try and get this boy the help he needs, it will probably be for naught. If you get the required amount of signatures, the white house will issue a response like this. Thank you for taking the time to create this petition. We cannot respond to this issue because the FDA is operated separately. Thank you your interest. Contact the Food and drug administration directly. Do not go through the White House. You are going to get a no response, response.

  8. Please join a kabbalah bl’n to accept being more devoted in our Davening & to STOP all the disturbances & talking during davening which causes great zilzul in Hashem r”l. Stop the talking! Stop the Texting! Come on time & in this great zechus may all cholei yisroel be healed speedily!!!! Yeshuos Hashem K’Heref Ayin

  9. I did this. I hope it works. Sadly, even if he gets approved, the whole procedure is very sketchy if it’ll even help him. He needs our tefillos more than anything.

  10. Not kidding, just refreshed the page for the petition, and signatures needed went from 210 to 236, then minute later back to 210. Wonder if Obama is playing with these numbers or just another glitch in one of his websites!

Comments are closed.