[COMMUNICATED] To some it might seem like a good thing to never feel pain, but for 7 year old Elyashiv Vazan’s parents, it is a nightmare.
“He is lacking in his sense of touch,” says Moshe Vazan of Beit Rimon, Israel. “He can touch a hot stove [and not feel pain] and laugh. He makes himself fall on purpose. He has already broken a few teeth and has cut open his head.”
Elyashiv was born with PEDR2, a syndrome so rare only 11 others in the world have ever been diagnosed. In addition to not feeling pain, he is unable to walk, talk, or drink independently. He requires supervision at all times.
At the time of his birth, the Vazan family was unprepared for the full-time job of caring for a child with such unique needs. Their small home’s passageways are too small for Elyashiv’s wheelchair to pass through. Their bathroom is not easily accessible to him. Their leaky roof exposes their home to the elements, a serious problem for a child who cannot regulate his own body temperature.
They are, quite simply, unable to give him the help he needs. However they have not given up hope. A fund has been started in hopes of building the home Eyashiv deserves. With the help of donations, they may be able to provide him with essentials such as a wheelchair-accessible shower, and a room of his own.
“We wake up every morning, hoping for the best.”
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