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VIDEO: A mother’s plea and race against time for chance at FDA-approved ‘miracle drug’

Submitted: Eliana Cohen, daughter of Shani Levi Cohen and Ariel Cohen, (Miami Forida) is about to turn 2 years old. She has been diagnosed with SMA type 2, which is a very rare genetic disease.

In May 2019, the FDA approved a “miracle drug” Zolgensma, which can create the gene that is missing. This approval has allowed for the drug to be administered only for children up to 2 years of age. We are now in the fight for life trying to get this medication for Eliana. This medication could help Eliana to have the ability to stand and hopefully walk while securing her ability to eat and breathe on her own. This drug is a one time dosage that costs around $2.2 million dollars. At this time, insurance is denying the approval of this drug for Eliana.

We have exhausted all avenues including doctors, attorneys, judges and appeals to help us. If the baby does not get this medication by July 18th she will no longer be applicable, as the FDA only approves for babies under 2. This new drug Zolgensma made by Novartis/AveXis is the “miracle cure”. We are asking for your help so Eliana can have this life changing treatment. ++We have less than 1 week to achieve this goal.++ Anything that you can contribute is sincerely appreciated.

You can view the campaign here. https://thechesedfund.com/esther/save-eliana

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There are 2 Comments to "VIDEO: A mother’s plea and race against time for chance at FDA-approved ‘miracle drug’"

  • Yid says:

    מי כעמך ישראל
    Amazing we, Klal Yisroel, succeeded. Raising over $2,000,000 in just 3 days.!

    This is the second story this week of klal Yisroel coming together in such big ways to help total strangers. And we succeeded.
    One nebach ended in a ‘Nes’ but in tragedy,this one hopefully will end in a Nes in simcha.

    These 2 cases of Kiddush Hashem should cry out to HaShem to send Klal Yisroel Yeshuos and Brachos. May we zoche to see the ultimate כבוד שמים with the גאולה שלימה.

  • Kevin says:

    Wow. I am speechless. I had no idea what one would do in a situation like this 2.2 mil in a few days? Its amazing to see how this turned out. I am blown away.

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